Endometriosis

Endometriosis is a painful disease that affects millions of women worldwide.

Endometriosis can be incapacitating, and affects a woman’s entire life. Millions of women are suffering with this disease, putting their lives on hold, struggling with fertility, while also waiting years to determine a diagnosis. Treatment options vary, and women need to know their options so that they can manage the pain and get back to living their lives.Women with endometriosis suffer through severe pain, usually pelvic pain correlating with a woman’s menstrual cycle. The pain can also be found in the lower back region or bowels, during menstruation, ovulation, intercourse, or any time during her monthly cycle. The pain can be so strong that it is debilitating, and often forces a woman to put off her life while she struggles to maintain a level of comfort. In addition to dealing with the pain, 30 to 40 percent of women who have endometriosis also struggle with fertility issues and have difficulty conceiving.

Women In Government has created the Endometriosis Awareness and Education Toolkit in March of 2012 for state legislators to promote awareness and to facilitate effective policy action. The Toolkit provides information about endometriosis’s prevalence, symptoms, diagnosis, and treatment in order to deliver the most current knowledge available. It also includes sample legislation from several states, as well as outreach materials, and awareness activities for constituents.

The Endometriosis Education and Awareness Toolkit can be accessed via the links below:

 

Recent Events

March 2012

Women In Government launched its Endometriosis Awareness and Education Toolkit on March 15, 2012 to provide state legislators with the knowledge and tools they need to enact effective policies to combat this painful, and often debilitating, disease. Please see the toolkit materials above to learn more about the disease.

November 2011

An estimated 176 million women and girls’ worldwide (7.5 million women in the United States) are affected by endometriosis - the most common cause of pelvic pain and infertility in women. Despite this fact, the average diagnostic delay is seven years, and recent studies suggest annual costs in excess of $70 billion in the U.S. alone. Women In Government’s Second Annual Healthcare Summit featured two speakers to discuss the impact of endometriosis on Women’s Health.

Lone Hummelshøj, a well-known an advocate in the field of endometriosis, in particular for her work in getting the disease recognized in the European Parliament and European Commission spoke about the disease and her work. She was instrumental in the implementation of the first ever national legislation which provides referral guidelines to specialist centers for the treatment of endometriosis in Denmark. Seven years ago she created the website endometriosis.org, which is now the largest global online resource for news and information in the field of endometriosis. To learn more about her work and endometriosis, please access her additional materials here.

The second speaker, Heather Guidone, the Director of Education at the Endometriosis Foundation of America (EFA), spoke about her experience as a Stage IV endometriosis and infertility survivor herself, and how her personal passion drives her efforts to improve the lives of those affected. At the EFA she is responsible for oversight of the EFA's education, scientific, and research endeavors. She also holds the senior voting seat on the Executive Board of Directors of the Endometriosis Research Center (ERC) and is currently serving a two-year elected term on the Executive Board of the American Society for Reproductive Medicine’s (ASRM) Women’s Council.

Additional Resources:

 

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