Newborn Screening – Public Policy Impact on Early Diagnosis and Treatment

Event Date(s): 
Wednesday, November 10, 2021 at 4:00 pm - 4:30 pm ET; 3:00pm CT/2:00pm MT/1:00pm PT/12:00pm Alaska /11:00am Hawaii
Location: 
Via Zoom
Event category: 

Newborn Screening – Public Policy Impact on Early Diagnosis and Treatment

During this virtual policy round-table event, subject-matter experts informed us how newborn babies get screened at birth to identify serious but rare health conditions. Did you know each state decides which tests are required? 

Moderated by:
Connecticut State Representative Christie Carpino, Secretary, WIG Board of Directors


Panelists:
Annie Kennedy, Chief of Policy, Advocacy, & Patient Engagement, EveryLife Foundation for Rare Diseases
Raffaella Colzani, MD, Senior Medical Director Rare Diseases - North America Medical Affairs, Sanofi Genzyme

 

Link to Shared Screen View 

Link to Audio

Link to Presentation Slide Deck

Resources: